Expert Answers - Fontan Heart

Fontan Heart

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Expert Answers

This is a space for moms' questions. I hope to get experts to address them and help you care for your baby's heart, manage medicine, to push your child to thrive developmentally, to show you physiotherapy to do at home and what you can do in a hospital.

WHY MENTAL HEALTH MATTERS - with Prof. Edward Callus, CHD Clinical Psychologist

WHY MENTAL HEALTH MATTERS - with Prof. Edward Callus, CHD Clinical Psychologist

Hospitalizations and medical interventions leave lasting marks on children with CHD, far beyond physical scars. This post explores the importance of mental health support, resilience, and family involvement in shaping a better quality of life for our young warriors.

CAN CHILDREN WITH CHD GET THEIR EARS PIERCED? - with Marc Gewillig, em. prof. dr.

CAN CHILDREN WITH CHD GET THEIR EARS PIERCED? - with Marc Gewillig, em. prof. dr.

Emanuela’s wish for earrings seemed innocent, but with her complex heart condition, the decision to pierce her ears carried risks. Was there a safe way to do it? Here's how we navigated conflicting medical advice.

SWIMMING IS GREAT, BUT... - with MUDr. Martin Záhorec, PhD.

SWIMMING IS GREAT, BUT... - with MUDr. Martin Záhorec, PhD.

It's been a week since we came to our usual summer destination. True to her pattern of needing between five to seven days to adjust, our "blue kid" made peace with the Adriatic Sea being colder than her bath. Swimming is a great activity for Fontan

WATER INTAKE - with MUDr. Martin Záhorec, PhD.

WATER INTAKE - with MUDr. Martin Záhorec, PhD.

Children with single ventricle hearts should drink plenty of water throughout the day. But, what is plenty? I never gave it a second thought. Until recently. We visited a nephrologist to deal with our daughter's incontinence. After she successfully passed a computerized toilet test and some other check-ups,

ASPIRIN AND REYE SYNDROME - with MUDr. Martin Záhorec, PhD.

ASPIRIN AND REYE SYNDROME - with MUDr. Martin Záhorec, PhD.

Many kids (and adults) with a congenital heart defect take Aspirin for years. If there are no bleeding contraindications, many take it as a lifelong therapy. It is a very important drug as it prevents thromboembolic* complications. Vedenie kardiocentraNÚSCH, a.s.Embex - www.embex.sk MUDr. Martin Záhorec, PhD.

ASPIRIN AND REYE SYNDROME - with Marcela Omahen, MPharm., Spec.

ASPIRIN AND REYE SYNDROME - with Marcela Omahen, MPharm., Spec.

The first day at home from the hospital I spent mostly stressing about meds. Trying to make it right. Ten times per day. Between 6am and midnight. Barely awake on each end. This maddening tempo eventually slowed down. Many drugs were taken out. And new came along. With blood-thinning Aspirin

NESKORÁ DIAGNOSTIKA - with MUDr. Matej Nosál', PhD.

NESKORÁ DIAGNOSTIKA - with MUDr. Matej Nosál', PhD.

(in SK language) *MUDr. Matej Nosál', PhD., chief of cardiac surgery at the Children's Cardio Center in Bratislava, Slovakia, talked about a problem of lack of in-utero diagnosis of congenital heart defects in a recent podcast for www.preventivne.sk. Here's an excerpt. Ročne sa