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Mom's Diary

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Katarina Stano

Jan 18, 2018

January 18, 2018

It's that moment when you know - life will never be the same again. And everything else stops to matter.

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Hospital Diaries: Cardiac Catheterisation

Emanuela's latest planned procedure - cardiac catheterisation - was filled with emotional challenges. It made me realize how right Viktor E. Frankl, author of Man's Search For Meaning, was in seeing humor as a lifeline to both sanity and survival.

Oct 25, 2024 10 min read

Meg Didier on Mental Health: The Trauma of Single Ventricle Heart

As heart parents, we often wonder how early trauma will manifest as our children grow. Through insights from single ventricle survivor Meg Didier, we can learn how deep those experiences run—and how essential it is to look beyond survival to their long-term mental health.

Oct 11, 2024 8 min read

CAN CHILDREN WITH CHD GET THEIR EARS PIERCED? - with Marc Gewillig, em. prof. dr.

Emanuela’s wish for earrings seemed innocent, but with her complex heart condition, the decision to pierce her ears carried risks. Was there a safe way to do it? Here's how we navigated conflicting medical advice.

Sep 27, 2024 6 min read

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