First time I Googled something like "pregnancy with a single ventricle heart" was around six years ago, when I found out our daughter would be born with half a heart. Would she ever be able to have children of her own? Preparing myself for what was to come,

"Exercise is the best you can do for her," was a simple answer from our daughter's cardiologist to all my questions. Can she hang from stuff? Can she be upside down? Can she go under the water while swimming? Can she swim? Can she jump? How

One of the first things I have learned at the beginning of this journey of ours, I remember, was that fixing a single ventricle heart is palliative. Palliative, I thought, as in sitting next to a terminally ill person, holding hands and waiting to die. But it turned out that

For a parent bringing the child for a procedure to the overwhelming Cardiac Catheterisation Laboratory (Cath Lab) does not necessarily make any difference with bringing the child to the operating theatre. The process is the same - putting the scared child on the table, showering him or her with kisses,

Although resilience and high quality of life are demonstrated by many individuals with congenital heart disease, a range of significant psychological challenges exists across the life span for this growing patient population. Psychiatric disorders represent the most common comorbidity among people with congenital heart disease. The American Heart Association scientific

(taken from Single Ventricle Heart Defects | Children's Hospital of Philadelphia) The heart typically has four chambers. The upper chambers, called atria, receive blood flowing into the heart. The lower chambers, called ventricles, pump blood out of the heart. 💡A child with a single ventricle defect is born with

(taken from What are Congenital Heart Defects? | CDC) Congenital heart defects (CHDs) are present at birth and can affect the structure of a baby’s heart and the way it works. They can affect how blood flows through the heart and out to the rest of the body. CHDs can